Thanks for spending some time on my Pilonidal blogsite. I hope you find it informative, entertaining or useful, or if I’m lucky all three.
I’m a man in my early 30’s, and I’ve suffered with Pilonidal disease at various times to a lesser or greater extent, for a total of about eight years. I had my first Pilonidal surgery in 2005, and my last one in 2008. I live in the UK, in Surrey, and I’m fortunate to work as a designer for a digital media company, which means throughout my recovery periods post surgery I was able to work effectively at home. I sympathise with anyone else living with Pilonidal disease, particularly those people whose ability to do their job is ruined by long post surgical healing times, and I’d love to hear from you if you’d like to get in touch. I’m particularly interested to hear from you if you’ve had a failed z-plasty or flap reconstruction of any kind.
For the purposes of avoiding spam, my email address isn’t on the site, however if you leave me a comment I’ll write back to you and delete the comment afterwards if you ask me to. The first comment you post won’t appear on the site until I’ve ok-ed it anyway so your comment need not ever actually appear at all if you don’t want it to.
Anyway the history of my Pilonidal Sinus starts here and an account of my surgeries are in the navigation on the right. I started this site during the healing after my fourth surgery and I posted updates during the process to the blog, eventually it healed up, so this site is basically a summary of my experiences with the disease and the wisdom that I’ve accumulated along the way.
Colin
August 11, 2008 at 6:33 pm |
Hi,
I’ve found your blog very interesting to read, especially as my son is going through the same sort of thing.
I was interested in your comment re people with fair skin being affected. Is there any research on this, do you know? If so, I’d like to read it.
Good luck with the treament.
Joyce
July 28, 2008 at 12:37 pm |
Hi Colin,
Wow, only just found your blog on the pilonidal.org website, of which I’ve been a member for a while. I can identify with your problems with the NHS – I’m in Scotland and had my first surgery last year in October – closed surgery, of course after two weeks of things going well, it’s not closed fully since. I was so fed up of trying to get an appointment with my surgeon for a check up after the op (and i only met him five mins before I went under) I eventually saw him nearly 6 months later for my ‘2 month check up’ – he dismissively said it would heal. I took matters into my own hands, hunted down the nearest cleft lift surgeon, saw him earlier this month and now awaiting an appointment for him to perform it on me. I can’t wait. What operation did you go under for your 4th surgery? When did you have it? Hope you’re healing well, nice to have a UK person that identifies with the same problems! Happy healing, Nat x
April 23, 2008 at 9:28 pm |
Hi
Thanks for a great blog! My 16 year old son has had 3 operations, first in Nov 2005 and has never healed. I am about to go to a private consultant to see if he can give me some answers as my sons consultant doesnt seem to care. He wears dressings every day and has one infection every 2 – 3 months. He just started another course of antibiotics today! I fear that he may never heal. I have read a few websites tonight and the recurring theme scares me.
Strange thing is my son has a twin, he had the same thing 9 months previous and had his operation and healed no problem!
I hope you heal, a friend has advised me to ask to see a plastic surgeon with the thought of having a skin graft, am not sure if that would work because of the location. I intend to call my GP tomorrow and ask his advice.
Carol Kerr